Skin biopsy and autonomic testing

Skin biopsy and autonomic function testing Hi everyone, good to see you back here! Today I'm writing about the skin biopsy and the autonomic function testing, which I had done back in 2014 to test for small-fiber neuropathy.I can assure you that this post will be pretty unspectacular and less painful to read compared to the story about the gruesome headache...

Read More

My foot and hand pain got worse....

My foot and hand pain got worse 😩... Hi there,   thanks for coming back despite the gruesome spinal tap story last time. I know it was painful to read Today I'll give you an update on my current symptoms. Because, truely, things are just happening non-stop at the moment....this "stupid😡" neuropathy has decided not to give me a break right now....But...

Read More

Worst headache after spinal tap

Worst headache ever after my spinal tap Hi everyone, I hope you are all enjoying the weekend! I have news. I received my first shot of the COVID-19 vaccine yesterday!💥💥In my last post, I told you that I will probably get my vaccine next week. For once things happened a lot faster than I expected. My past experience of dealing with my neuropathy has taught...

Read More

All tests came back normal

Hi everyone! Good to see you back! First of all, thanks for putting up with my amateur website management💙  As some of you have already told, for some reason the update emails stopped working and you didn't get a notification on Monday.... BUT you did get random emails notifying you of old posts.....sorry about that. It wasn't click bait, it was...

Read More

Found a great neurologist

Hi everyone, Thanks for checking in! Today's post will be a bit shorter, because I am busy trying to optimize my blog. I spent most of the day yesterday trying to figure out how to redesign my blog to make it more reader friendly and nicer to look at. And given that I am a total newbie to homepage design it takes me veeery long.....I must say though, I am learning...

Read More

First (not so great) neurologist

The first neurologist I saw did not really care... Hi everyone, thanks for checking in!  In one of my last posts, I wrote about my first GP visit for my weird neurological symptoms, which included tingling, pain, and redness in my hands and feet, which started all of a sudden back in 2014. Today, I will talk about the first appointment with a neurologist which...

Read More

Daratumumab for my SFN?

I will try daratumumab for my small fiber neuropathyHi everyone good to see you back here! 🌺   I have some good news, so i thought I'd write a quick update.  I just received a letter from my health insurance yesterday, saying that daratumumab has been approved for an off-label treatment trial of my autoimmune small-fiber neuropathy - yeii! But let's...

Read More