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This is a collection of resources I found on my journey with small-fiber neuropathy. The list is work in progress and I will keep adding links as I find them....
If you know any helpful resources, let me know and I'll post them here 🌺
Neuropathy information
Neruopathycommons is a great resource for all sort of info on neuropathy
https://neuropathycommons.org/
Lecture Prof. Oaklander, small-fibers big pain
Lecture Prof. Oaklander, small-fiber neuropathy: contributor to unexplained multi-symptom illness
Washington University, St. Louis, Missouri
https://neuromuscular.wustl.edu/sensory-small.html
Labs to measure SFN antibodies
Celltrend in Berlin, Germany (accept international shipping)
https://www.celltrend.de/en/update-ts-hds/
Washington University, St. Louis Missouri, USA (accept international shipping)
https://neuromuscular.wustl.edu/lab/reqs/SerumRequisition.pdf
Scientific publications that may be helpful
Oaklander et al. Scientific Advances in and Clinical Approaches to Small-Fiber Polyneuropathy: A Review. Jama Neurology 2019. 76(10):1240-1251.
Treatment:
Shofield et al. How we treat autoimmune small-fiber neuropathy with immunoglobulin therapy. European Neurology 2018: 80;304-310.
Liu et al. IVIg for apparently autoimmune small-fiber polyneuropathy: first analysis of efficacy and safety. Ther Adv Neurol Disord 2018: 11: 1756285617744484.
Clinical Features and Treatment Response in Immune-Mediated Small Fiber Neuropathy with Trisulfated Heparin Disaccharide or Fibroblast Growth Factor Receptor 3 Antibodies. J Clin Neuromuscul Dis
. 2021 Jun 1;22(4):192-199.
doi: 10.1097/CND.0000000000000355.
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