IVIG for autoimmune small-fiber neuropathy

My experience with Intravenous Immunoglobulins (IVIG)Hi everyone, good to see you back here! 🌺Many people have asked me if I had tried IVIG (intravenous immunoglobulins) or SCIG (subcutaneous immunoglobulins) to treat my autoimmune small-fiber neuropathy. Yes, I had IVIG and SCIG for quite some time It worked very well for my neuropathy, but it was quite a ride Around...

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Pregnancy and small-fiber neuropathy

Pregnant with autoimmune small-fiber neuropathy Hi everyone, good to see you back here after a long time! 🌺I've been absent for a veeeery long time. You might already guess why...  we had a baby last October... In this post I'll let you know how my small-fiber neuropathy behaved during and after pregnancy. I hope this will be of help to many of you. I...

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Daratumumab restart

Daratumumab here we go again Hi everyone, good to see you back here! 🌺It's been a while since I told you that I'd had a flare of small fiber neuropathy after a viral infection in early December. In the first half of January, I got 2 doses of daratumumab to get this flare back under control. In this post, I'll talk about how this has been working so far. So...

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Neuropathy flare caused by a virus...🦠

I caught a viral infection... Hi everyone, good to see you back here! 🌺 I hope you all had a happy and restful holiday break. I'm checking in with an update on my small-fiber neuropathy. I've been dealing with a neuropathy flare since NovemberIn one of my last updates, I told you that my neuropathy was only mildly active and overall didn't limit me too...

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My neuropathy workup in Boston

I finally met a specialist in 2017 Hi everyone, good to see you back here! 🌺 In this post I take you back to 2017, when my second small-fiber neuropathy flare started, while I was living in Boston doing a postdoc at a large hospital. This is just a bit of Boston spam. A photo that Steve took while he was over visiting. I recommend to first read part...

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